A Fundraiser for Nemaline Myopathy

LoveLiv 2017

For its fifth annual fundraiser benefitting A Foundation Building Strength (AFBS), on March 5th, LoveLiv put on a Soul Cycle ride! AFBS remains the only non-profit worldwide dedicated to finding treatment for Nemaline Myopathy, a rare muscle disease that Liv has. People with NM, including Liv, generally cannot eat, breathe and walk on their own. Life expectancy is greatly reduced due to respiratory complications. Although Liv has made great strides, she just turned 5 years old and still cannot walk or crawl, and relies on a feeding tube for some of her nutrition. With your help, we can find treatment to better Liv's life and those with NM.

So far, the event has raised over $70,000 to fund much needed research to find treatment for nemaline myopathy.

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Liv’s Story

Liv has nemaline myopathy, a rare disease that affects skeletal muscles. This makes moving, eating, and even breathing very difficult.

The disease is so rare that it took nearly 7 months of constant testing and doctor's visits to figure out what was wrong

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