past events

LoveLiv 2016

LoveLiv

For its fourth annual fundraiser benefiting A Foundation Building Strength (AFBS), LoveLiv once again put on a Soul Cycle ride! Thanks to the amazing support of the community, LoveLiv 2016, has so far raised over $80,000! We are so grateful to everyone who participated, contributed, and donated. Such generosity and engagement gives us the hope and resources to find treatment for Nemaline Myopathy.

AFBS remains the only non-profit worldwide dedicated to finding treatment for Nemaline Myopathy, a rare muscle disease that Liv has. People with NM, including Liv, generally cannot eat, breathe and walk on their own. Life expectancy is greatly reduced due to respiratory complications. Although Liv has made great strides, she just turned 4 years old and still cannot walk or crawl, and relies on a feeding tube for some of her nutrition. Like so many with NM, her speech is affected by severe muscle weakness in her mouth.

With your help, we can find treatment to better Liv’s life and those with NM. AFBS is seeking to fund a gene therapy study for Nebulin based Nemaline Myopathy, targeting the same mutation Liv has. If this study is successful, Liv could have treatment in a few years. This is one of the most exciting proposals we have received and we need your help!

Sunday, March 13, 2016
SoulCycle, Culver City, CA

afbs-cycle-2016-la


LoveLiv 2015

For its third annual fundraiser benefitting A Foundation Building Strength (AFBS), LoveLiv organized Soul Cycle ride! AFBS is seeking to fund 9 research grants and all proceeds from Cycle for Strength will fund those studies. AFBS remains the only non-profit worldwide dedicated to finding treatment for Nemaline Myopathy, a rare muscle disease that Liv has. People with NM, including Liv, generally cannot eat, breathe and walk on their own. Life expectancy is greatly reduced due to respiratory complications. With your help, we can find treatment to better Liv’s life and those with NM.

Thanks to the amazing support of the community, LoveLiv 2015, has so far raised over $77,000! We are so grateful to everyone who participated, contributed, and donated. Such generosity and engagement gives us the hope and resources to find treatment for Nemaline Myopathy.

Loveliv 2014

On May 18, 2014, we put on Loveliv 2014, our second annual fundraiser to benefit A Foundation Building Strength.  LoveLiv 2014 was another amazing success due to the wonderful generosity of the community and our donors. The event raised over $60,000 that is going towards 9 research projects that are part of our Building Muscle initiative.

Sunday May 18, 2014
11am-2pm
Star Eco Station
10101 Jefferson Blvd.
Culver City, CA 90232

Food, live music, family entertainment, silent auction

food

 

Camacho’s Cantina Universal City Walk

camachos
Camacho’s has been serving authentic Mexican food to locals and tourists alike at some of Los Angeles’ most exiting venues.  LoveLiv is thrilled Camacho’s Cantina will be serving up an array of tasty appetizers!

Factors Famous Deli

catering-factors
For 62 years, Factor’s Famous Deli has provided high quality food, generous portions, friendly service in a warm family atmosphere. Factors is providing its famous and comforting macaroni and cheese and Debbie’s veggie chopped salad. We are grateful to have this family run establishment support LoveLiv, once again!

John O’groats

john_ogroats_logo

 

If the mob of people outside the door doesn’t give it away, West L.A. neighbors go crazy for this local eatery!  LoveLiv will too and is thrilled to have John O’ Groats serve up their fresh and tasty pastas and chicken wings.

 

LaRocco’s Pizzeria

LaRocco’s Pizzeria

Paul Larocco has brought his New York secret to California, and at LaRocco’s you can taste the difference! Every pizza they make is stone baked to perfection for that true authentic flavor! As for the sauce, Paul uses his grandmother’s recipe, made on site.  Loveliv is excited to have LaRocco’s Pizzeria offering up their yummy slices.

Sugar Dayne Cookies

Sugar Dayne
Amazing mom of 2 and baker, Katy Metoyer of Sugar Dayne, brings her delicious and whimsical cookies to LoveLiv!  We’re excited for more cookies this year, too.

 

entertainment

Los Pinguos 

Los Pinguos
Originally from Buenos Aires, Argentina. Los Pinguos combine Latin rhythms, performed with Spanish guitars, , bass and harmonizing vocals. The sound of Los Pinguos has claimed fans worldwide and we are excited to have them at LoveLiv!
 

Eco Station

eco_station
Guided tours of the Eco Station introduce visitors to a host of exotic rescued wildlife, from tropical fish to tortoises, from parrots to pythons. Each tour is led by an expert Eco Station staff member who explains the habits and history of hundreds of rescued exotic animals. LoveLiv attendees will have the chance to meet several of the exotic rescued animals up close and personal.
 

GameTruck

GameTruck
GameTruck theater carries the latest consoles and games, With at least 4 giant HDTVs, there’s something for every gamer.
+ arts and crafts, bouncies, face painting!

location

Star Eco Station
10101 Jefferson Blvd
Culver City

Loveliv 2013

On May 19, 2013, we held our first LoveLiv event to benefit A Foundation Building Strength. LoveLiv was a family event at the Star Eco Station. Activities included tours of the Eco Station animals, arts & crafts, bouncies, face painting by Dayna Mondello and Guiding Lights Emme Ryan, and a silent auction with amazing items. American Idol top five contestant, Brooke White, performed, celebrities Hank Azaria and Jessica Capshaw made appearances and Stout Burgers and Beer and Factor’s Famous Deli provided wonderful food. LoveLiv raised $70,000 which funded 2 studies that could greatly impact those with NM.

Sunday May 19, 2013
11am-2pm
Star Eco Station
10101 Jefferson Blvd.
Culver City, CA 90232
Food, live music, family entertainment, silent auction

food

stout-logo
Stout Burgers and Beer, which serves the finest selection of unique, hand crafted draft micro brewed beers, along with fresh, creative food will be serving one of their artisinal beers along with several of their “new-style burgers” and several tasty sides.

catering-factors

For 62 years, Factor’s Famous Deli has provided high quality food, generous portions, friendly service in a warm family atmosphere. Factors is providing its famous and comforting macaroni and cheese and Debbie’s veggie chopped salad. We are grateful to have this family run establishment support LoveLiv!

Sugar Dayne
Amazing mom of 2 and baker, Katy Metoyer of Sugar Dayne, brings her delicious and whimsical cookies to LoveLiv!

entertainment

Brooke White
American Idol’s Season 7 top 5 finalist Brooke White and her band will delight the LoveLiv audience with their passionate swirl of willowing soul and 70s flavored gold.

eco_station

Guided tours of the Eco Station introduce visitors to a host of exotic rescued wildlife, from tropical fish to tortoises, from parrots to pythons. Each tour is led by an expert Eco Station staff member who explains the habits and history of hundreds of rescued exotic animals. LoveLiv attendees will have the chance to meet several of the exotic rescued animals up close and personal. + arts and crafts, bouncies, face painting!

location

Star Eco Station
10101 Jefferson Blvd
Culver City
Follow us Twiter RSS